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Browsing Tag: cerebral palsy

Cerebral Palsy

Heightened Awareness

February is Jewish Disability Awareness and Inclusion month. The month is a unified effort among Jewish organizations worldwide to bring awareness and encourage inclusion of people with disabilities and special needs. According the WHO, about 15% of the world’s population lives with some form of disability – that’s about one billion people. The Jewish community experiences disability like any other group of people. While individual Jewish communities have certainly done their part to bring ...
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Cerebral Palsy, Parenting

Relentless Commitment

In the first year of Amichai’s life, he had one PT session and one OT session a week. I was given homework to do in the interim – daily stretches and exercises that worked to strengthen his right side. Here’s the thing with me and homework – I have always done my homework. I have always done the task I was assigned because I believed it would help me get better at whatever I was trying to achieve. I studied hard, I didn’t cut class, and I did my homework. I did the same with sports. I ...
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Cerebral Palsy, Parenting

Onwards

We have been living in a bubble. Six years. When Amichai was one, he entered a day care program that took care of all his needs – PT, OT, speech therapy, not to mention a watchful and caring staff that worked with us to set lofty goals. When he was three, he marched himself upstairs to start the pre-kindergarten program. When he was five, he ran from the right end of the hallway to the left end of the hallway to start kindergarten. At every stage – the same watchful and caring staff at our ...
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Cerebral Palsy, Parenting

Clearing The Way

I heard a new parenting term the other day – snowplowing… you know, like clearing the way. Any obstacle that comes into your kid’s path – bust out the snowplow and smooth the way, ensuring an easy open path to success. I got a good laugh from that. My general approach to life is the opposite. Leave the obstacles – we learn from them, we grow from them, we become better because of them. I’m not saying to add extra, or to ask for more – but whatever is put in front you – ya, lean in. ...
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Cerebral Palsy

Graceful Anger

Amichai had tendon lengthening surgery in the beginning of April. After much research, deliberation, second opinions, and more deliberation – we decided to go through with the procedure. The surgery entailed lengthening two muscle tendons in his right hand and arm – the adductor and FPL. The goal of the surgery was to bring his thumb out of his palm so that he would be able to use his right hand more efficiently. Explaining to a five-year child that he will undergo a surgery is ...
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